Conclusions and recommendations
Of the 2nd international conference Continence+2018 in Ljubljana, Slovenia
Organised by the Emonicum Institute from Ljubljana in cooperation with The Ministry of Health of The Republic of Slovenia
Conference participants from Croatia, Italy, Hungary and Slovenia, considering the facts that:
- Incontinence is one of the most prevalent health and social disorders,
- It is present in all age groups and with progressing longevity becoming an important geriatric syndrom,
- It is a specific disorder with many possible causes,
- It has different intensity in urine or fecal form,
- Because of its stigma, shame and stress it is the most hidden individual problem,
- Is a reason of discrimination and ageism,
- It has a huge health, social and economic impact.
- Differences in quality and accessibility of daily care make incontinence also a social illness,
- It is an important factor in long-term care, influencing quality of life of both care givers and care receivers,
- Most profesional, social and ethical challenges have been present in informal care, which has been mostly performed by uneducated family caregivers,
- In the environments of participating countries there is a lack of properly educated care-staff,
- High number of patients is using devices in an inappropriate way,
- Incontinence enjoys insufficient attention in health-care, public-health and politics.
Also state that:
- Patients can be helped by effective measures, drugs, devices and surgical procedure,
- Successful methods of self-care are available,
- People with incontinence can live an active and healthy life with proper support.
Are calling upon responible health, social and political stakeholders that:
- They shall with a positive orientation and by respecting patient-centric values, public-health principles and ethics, endeavour for higher quality of life of incontinence affected patients,
- They do not reduce existing rights of patients with incontinence in an effort to provide them higher quality of support,
- Next to the population interventions they understand and support indivdual needs as well.
- They shall by respecting professional EU Guidelines on Incontinence and 14 Quality Indicators presented at the GFI meeting 2018 in Rome and considering societal reality in each country, support preparation of legislation, national strategies and guidelines for a qualitative, efficient, transparent incontinence care with general and individual indicators,
- Endeavours should link professional areas, non-governmental organizations, patients and local communities,
- They shall support proper professional qualifications of doctors, nurses, formal and informal caregivers for an individual, qualitative and accessible care,
- Care shall include preparation of an individual care plan considereing individual capacities of each and every patient as well as appropriate selection and use of devices,
- They support activities and research that support independence and autonomy of life with all forms of incontinence,
- They support the reduction of incontinence stigma in public and on national and international level strenghten positive changes.